Keywords
Bioética Terapias avanzadas Enfermedades raras Equidad sanitaria Consentimiento informado Justicia social, Bioethics Advanced therapies Rare diseases Health equity Informed consent Social justice
EDITORIAL. Terapias avanzadas y Bioética: estar a la altura de la humanidad que nos define
Abstract
El editorial reflexiona sobre los desafíos bioéticos que plantean las terapias avanzadas para las enfermedades raras, incluyendo terapias génicas, celulares e inmunoterapias. Destaca los dilemas relacionados con la investigación, el consentimiento informado, la equidad en el acceso y la seguridad a largo plazo. La autora defiende que la bioética debe garantizar la protección de las personas más vulnerables mediante los principios de beneficencia, autonomía, justicia y no maleficencia. Asimismo, reclama políticas públicas y colaboración institucional que permitan un acceso equitativo a estos tratamientos. La solidaridad y el cuidado de los más vulnerables son presentados como rasgos esenciales de nuestra humanidad
The editorial examines the bioethical challenges posed by advanced therapies for rare diseases, including gene therapies, cell therapies, and immunotherapies. It highlights key ethical issues related to research priorities, informed consent, equitable access, and long-term safety. The author argues that bioethics must protect vulnerable individuals through the principles of beneficence, autonomy, justice, and non-maleficence. The article also calls for public policies and institutional collaboration to ensure fair access to innovative treatments regardless of economic or geographic barriers. Ultimately, solidarity and care for vulnerable people are presented as fundamental values that define our shared humanity.
The editorial examines the bioethical challenges posed by advanced therapies for rare diseases, including gene therapies, cell therapies, and immunotherapies. It highlights key ethical issues related to research priorities, informed consent, equitable access, and long-term safety. The author argues that bioethics must protect vulnerable individuals through the principles of beneficence, autonomy, justice, and non-maleficence. The article also calls for public policies and institutional collaboration to ensure fair access to innovative treatments regardless of economic or geographic barriers. Ultimately, solidarity and care for vulnerable people are presented as fundamental values that define our shared humanity.
Información detallada
Materias, derechos, colecciones e identificadores