Subjects
UNESCO::32 Medicina::3205 Medicina interna::320508 Enfermedades pulmonares
Proyecto educativo para niños con edades comprendidas entre los 9 y los 12 años con Fibrosis Quística, en relación al patrón respiratorio
Abstract
La Fibrosis Quística es una enfermedad hereditaria, a día de hoy incurable, multisistémica,
que afecta principalmente al patrón respiratorio, siendo esta afección la principal causa de
muerte en este tipo de pacientes.
Teniendo en cuenta que durante la preadolescencia se asientan las bases de la enfermedad
y se comienzan a adquirir habilidades para el autocuidado, nos hemos centrado en esta
etapa para realizar sesiones educativas grupales. Estas sesiones buscan afianzar
conocimientos y mejorar las habilidades del niño con Fibrosis Quística para que ése sea
capaz, por sí solo, de autogestionar su enfermedad y tener la mayor independencia posible
en el cuidado de sus múltiples afecciones, especialmente en las respiratorias, de manera
que aumente también su autoestima. Para ello se tratan aspectos como los sentimientos,
conocimientos previos de la enfermedad, manejo de inhaladores, limpieza e higiene,
fisioterapia y deporte.
Cystic fibrosis is a hereditary multisystem illness that currently has no cure. This disease mainly affects the breathing pattern, being this complaint the leading cause of death in these patients. Bearing in mind that the basis of this disease are settled during the preadolescence and it is at this stage when patients begin to acquire skills for self-care, we have focused on this stage for the development of the group educational sessions. These educational group sessions seek to consolidate knowledge and improve skills, in order the child with Cystic fibrosis can be capable, by itself, to self-manage his illness and be as independent as possible in the care of his multiple complaints, especially the respiratory conditions, so as to increase also his self-esteem. This will cover areas such as feelings, previous knowledge of the disease, management of inhalers, cleanliness and hygiene, physiotherapy and sport.
Cystic fibrosis is a hereditary multisystem illness that currently has no cure. This disease mainly affects the breathing pattern, being this complaint the leading cause of death in these patients. Bearing in mind that the basis of this disease are settled during the preadolescence and it is at this stage when patients begin to acquire skills for self-care, we have focused on this stage for the development of the group educational sessions. These educational group sessions seek to consolidate knowledge and improve skills, in order the child with Cystic fibrosis can be capable, by itself, to self-manage his illness and be as independent as possible in the care of his multiple complaints, especially the respiratory conditions, so as to increase also his self-esteem. This will cover areas such as feelings, previous knowledge of the disease, management of inhalers, cleanliness and hygiene, physiotherapy and sport.
Información detallada
Materias, derechos, colecciones e identificadores
Keywords
Fibrosis Quística, Preadolescencia, Autocuidado, Patrón Respiratorio, Cystic Fibrosis, Self-Management, Preadolescence, Breathing Pattern